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Upside! Guestbook
July through August, 1998

This page contains the entries that were received during July and August, 1998. To view the current entries, please click on Upside! Guestbook.

we would like any information anyone has to offer on Downs Syndrome. Brianna was born just a month ago and was diagnosed three weeks ago. We aren't really sure where to go from here. We would really appreciate any advice, support...anything!
Pauline & Brian Wolak <wolakb@tucker-usa.com>
Stanwood, MI USA - Monday, August 31, 1998 at 10:58:40 (PDT)
I am needing information on anyone who may know of a feeding clinic? My 5 yr. old drinks Pediasure from a Bottle and wants to eat but pushes his plate away every meal.. He is very upset doing this! He does eat pickles. He will chew and chew till it is all muchy and swallow by holding his throat, moving his hand down as to help it follow his hand movement. He licks salt off fries and will sometimes eat icecream. He drinks 5 to 8 cans of Pediasure daily... He is starting kindergarden Monday (tomorrow) I forsee a hospitalizaton stay as if he doesn't get this formula in him, he becomes sick that fast!!! So, I am asking if anyone has gone through this or know anyone or anyplace with super reputation on helping this or some kinds of eating disorder? Colbys' disorder is a very rare one. He is senative to lights. He covers his ears to loud noises. In places where there is many things going on along with holding his ears, he will be sick (upchuck) or poop! Almost everytime we get ready to go somewhere from the excitement he will poop... or get sick... I am told this is part of his feeding disorder and it is RARE... I am trying and seeking any kinds of information from anyone who may have any ideas??? We are on HMO and I am fighting it all the way... But I am also, takeing any infor. that may direct me in all angles... Who better to ask than our own kind of personal? The more people I reach out to the better chances to come across needed and new information. Thank YOu and God Bless, Yes, I posted about the Seminar in Oregon Sept.12th Just a couple of weeks...Put on your calender!!! God is so Good to put us all together Colleen and Colby in Oregon Everyone is welcome to e-mail me anytime.....
Colleen Baker <elway@orcote.com>
Roseburg, OR USA - Sunday, August 30, 1998 at 21:58:50 (PDT)
TNI Seminar Sept.12th 1998 in Roseburg, Oregon 97470 speakers: Dixie Larance and Dr. L $15.00 per person $25.00 couple. (Lunch included) deadline for regristraton is Sept.5th. Need 3 more childern for the clinic on Sunday by Dr.L ASAP.... Please E-mail me for more information... Hope to hear from you or pass it on to anyone that can make it and I promise it will be very REWARDING!!! God is so Good! Colleen Baker in Oregon
Colleen Baker <elway@orcote.com>
Roseburg, OR USA - Saturday, August 29, 1998 at 23:41:25 (PDT)
I'm only 17, and it's hard to ask my parents questions about my 8 year old brother and my late sister, both of whom have Downs. Hearing what others have to say is very important and helpful to me as I try to understand this entire situation. Thank you very much.
Erin Taylor <Ketherin@aol.com>
St. Louis, MO USA - Saturday, August 29, 1998 at 16:00:29 (PDT)
I am the mother of a 9 1/2 year old boy with Down Syndrome. He gets frequent sinus and ear infections (he has ear tubes and has had his tonsils and adnoids out), his heart is strong, but his cholesterol is high (around 240) and he is very overweight. He is a little under 4 feet tall and weighs 85 pounds. His weight skyrocketed suddenly in the winter of 95. I have had his thyroid tested and the doctors say it is fine. My question is this ..... are the thyroid levels for children with Down Syndrome different than children without DS? Maybe a normal level for a person without DS is not normal for the child with Down Syndrome. If anyone has information on this, I would appreciate a response. Sincerely, Sharon O'Bleness PoohLet398@aol.com
Sharon O'Bleness <PoohLet398@aol.com>
Spokane, WA USA - Saturday, August 29, 1998 at 08:39:21 (PDT)
please send me some tips about how you raise you animals
jeremyoneill <polishboy32@hotmail.com>
titusville, pa USA - Friday, August 28, 1998 at 21:30:57 (PDT)
My husband and I are interested in adoption info re: Downs children. We have 3 of our own boys --14, 17 and 20. I have worked w/ Downs and other handicapped children for many years. Two of our sons are out of the house at school and as our home " lessens" with children, we are truly praying and seeking Gods will of opening our home to a Downs child. I am looking for info as to where I can look for adoption info, also our ages are 47 and 53--- is that a problem--we both are in excellent health and have a very secure homelife. Please E-mail any info you might have. We look forward to some replies!!! Thanks!
Debbie Peterson <DKP3Boys@ AOL.com>
Atlanta, GA USA - Friday, August 28, 1998 at 19:14:34 (PDT)
Hi there my youngest son Max has just celebrated his first birthday. He was totally unaware of all the excitement but is certainly being stimulated by all his new toys. He has just discovered how to roll and I am sure that one day very soon I will not be able to leave him on the floor and he will have moved accross the room. I woul be interested to hear from any other parent of a child with DS in the Glasgow North area....
fiona <starkid@msn.com>
Glasgow, Scotland - Friday, August 28, 1998 at 16:09:28 (PDT)
Donna, friend of little blessing, David and his parents... you didn't leave an email addy! Drop me a line...I'd love to share info and encouragement with you and your friends.
Armin <marcsdad@kansas.net>
USA - Friday, August 28, 1998 at 05:11:01 (PDT)
This is my first attempt at looking on the Internet for information about DS. My son is 19 months old. Anyone else viewing from Great Britain?
Di Gould
London, England - Friday, August 28, 1998 at 02:22:14 (PDT)
we are the fortunate parents of Christian Alexander Isaac Morrison and it is a definite privilege that God has allowed us to spend our time with Chris on this earth.
David & Tremona Morrison
charlotte, nc USA - Thursday, August 27, 1998 at 20:08:19 (PDT)
Chat Announcement: This week's chat topic will be digestive issues in individuals with metabolic disorders such as Down syndrome, autism, attention deficit disorder, food allergies, etc. All are welcome. The chat entrance can be found at http://www.nutrichem.com. Chat time is 9pm Eastern Daylight Time. All are welcome. We now offer a question/answer session where you can submit your question ahead of time. Simply go to the chat page on our website (http://www.nutrichem.com) to submit your question. It will be discussed during the chat and the answer posted with the archives. Please note: Chat entrance opens at 9pm EDT, if you arrive early and the chat is not yet open please reload our website at 9pm. If you have any questions please feel free to contact us toll free at 1-888-384-7855.
Kris Acker <parents@nutrichem.com>
, - Thursday, August 27, 1998 at 05:20:11 (PDT)
Hi, I have a two year old boy with DS named Leeon. I'm happy and proud to say that he is a very happy, healthy boy. I first heard of Nutrevene-D on December '96 on TV "60 Minutes". I called immediately after the documentary, and my boy has been taking these vitamins since he was 10 months. I didn't see any "amazing" changes. He has always been healthy, thank God. He hasn't been taking his vitamins for about two months because I have to buy more, and he has been sick often. I don't know for a fact that his being sick often has to do with him not taking his vitamins, but then again it may be the vitamins that have kept his immune system "up." If this is the case, this is the first time that I actually see a response to the vitamins, maybe because I started giving him the vitamins ever since he was small, and his pediatrician said it was okay - he also gives the vitamins to his daughter with DS. If there are any mothers out there that also use this vitamin, I would very much like to hear their comments.
Karla G. <kgrullon@earthlink.net>
Miami, FL USA - Wednesday, August 26, 1998 at 06:55:15 (PDT)
Hi. For those of you that are looking for information on the websites on DS, vitamin therapy, and piracetam, please visit this website: lleshin@davlin.net. I hope you find it helpful.
Sandra C. <migrman@riolink.com>
T. or C., NM USA - Monday, August 24, 1998 at 17:16:51 (PDT)
Hello everyone, I would just like thoughs that live anywhere near Oregon that would like to learn more about the TNI and Piracetam vits. We are having a Seminar Sept.12,1997 Roseburg,Oregon Dixie Lawrence Tafoya, and Dr.Lawrence G. Leichtman M.D. will be our speakers. For more infor. and time, cost, ect.. You can e-mail me at Deadline for registration is Sept 5th. This is going to be a very educational and exciting event. Hope to hear from you... God is so Good! Colleen Baker
Colleen Baker <elway@orcote.com>
Roseburg, OOR USA - Friday, August 21, 1998 at 08:51:53 (PDT)
Hi, my name is Lisa, and I just had a little girl born to me 8 weeks ago with Down syndrome. Her name is Chrissa Marie, and she has been a real joy to me, my husband, and our other three children. If anyone reading this knows of a doctor in the Rhode Island or Boston, Massachusetts area who supports the targeted nutritional intervention therapy, please let me know. I would like to encourage any new parents of babies with DS. All of those emotions are still fresh in my memory. If you want to talk, please e-mail me.
Lisa <maylynn@riconnect.com>
Providence, RI USA - Thursday, August 20, 1998 at 17:37:55 (PDT)
We have three girls: Maureen 8 (DS), Brigid 7, and Krystal 3 (DS). Maureen was adopted at 1 month and Krystal when she was 9 months. Maureen reads well and loves sports. This year she has been involved with Special Olympics athletics and has played in (mainstream) school cicket and miniball (similar to basketball) teams and coped really well. She really loves birthday parties, especially her own and planning for her ninth birthday (in October) began not long after the last one and now its uppermost in her thoughts (conversations, stories) daily! She has just been diagnosed with coeliac (celiac) disease so we have just started a life long diet that excludes the gluten found in most products made from wheat, rye, oats and barley. The major item being bread. Since coeliac disease is one of these conditions that peple with DS are more likely to get, I would like contact with anyone who is coping with this. Krystal is making good progress but she is one of those children who run off if not held, attached (we use a "hand-holder" wrist to wrist) or in a pushchair. Maureen went through a similar stage lasting several years, but fortunately by school age liked being with other children so much we only had a few incidences of her leaving school on her own. Her guardian angel obviously does an excellent job as the times we have lost her (usually in crowded places) she has reappeared or been found not long after. Krystal also likes to "flop" down if she doesn't want to go where we want her to, something I hope she grows out of soon before she gets too heavy. Today she did it as we were heading into preschool so I told her she either walked or we would go home, and immediately she got up and came! However despite the frustrations (some caused by dealing with the "experts"), we love having our girls and are always rewarded with lots of hugs and kisses. For those of you who have young babies I think the most important thing is to love and accept your child as he or she is and keep informed so you can help them reach their potential. Music, books, Barney Videos, and games of all types have been particularly important in our home as well as using sign language and reading to help your child's speech. Krystal loves going through her flas-cards and although I doubt she can actually read any she does know whch way up they go and is starting to distinguish between her own and her sisters' names. It is very encouraging to read other's stories of how well their children are doing because there tends to be a belief that DS children who can read and count etc are exceptions instead of realising that, given the opportunity, for most DS children this is normal. Stella.
Stella <ste.mcl@xtra.co.nz>
Rotorua, New Zealand - Wednesday, August 19, 1998 at 19:15:49 (PDT)
I have a daughter, Zoey, who is two years old with Down Syndrome. I would like to hear from anyone that has their child in a Montesorri (spelling?) academy or any other special preschool environment that might prove helpful in my search for a great education!
Jondra Eberhard <eberhard@midohio.net>
Richwood, OH USA - Sunday, August 16, 1998 at 18:58:55 (PDT)
Opps, sorry, my email add is lyndoble@subictel.com. Also one of the reasons why I am seeking help for Arthur to be given treatment in the US for his CHD is bec. the hospital here in the Philippines will not subsidize his operation bec. he has DS, they prioritize "normal kids". Why? I do not know. As far as I ma concerned, everyone has the right to live.
Lyn Doble <lyndoble@subictel.com>
USA - Saturday, August 15, 1998 at 07:10:25 (PDT)
I am a mother to Arthur who is 8 months old and has Trisomy 21. My husband and I are looking for a foundation that can help us get Arthur to the US so we can have his complicated congenital heart disease corrected. If you have any idea of a foundation that can help us, please e-mail me at lyndoble@mail.com Thank you
lyn doble <lyndoble@subictel.com>
USA - Saturday, August 15, 1998 at 06:57:10 (PDT)
Thanks for the sight, it is great. i have an 11 year old daughter with Mosaic Down Syndrome. she does great. she only resources out for math. Would love to hear from other parents. She also had a severe ASD that was repaired when she was 6 months old. She had a very difficult time for 2 years, everything is well now. Puberty is hitting, any help?
Glenda Beasley <danielsb40@aol.com>
Hattiesburg, MS USA - Friday, August 14, 1998 at 19:14:53 (PDT)
I have many patients with Down Syndrome.I'm student of dentistry and have to take care of many people with Down Syndome. odontonet@cwb.conex.com.br
Aracélis Lima de Mello <odontonet@cwb.conex.com.br>
Curitiba, PR Brazil - Wednesday, August 12, 1998 at 06:45:06 (PDT)
I have friends who have a blessing named David with Down Syndrome. I have fallen in love with their David. He is 2 months old, their second child. I'm checking all the sites I can for information and encouragement for them. This site was very precious with a special appreciation for those children. Thank you.
Donna
USA - Friday, August 07, 1998 at 20:52:04 (PDT)
Hello to everyone! As I read some of the letters, it got me to thinking that I am not alone. After anticipating the gift of life, my world was turned upside down. The evening that my daughter, Kameron, was born the head of the neonatal deptartment came to my room and told me that she the signs of downs. It took my breath away because of all the other things that could have happened did not. After I was told, my heart grew with more love than I could ever imagine. I was no longer afraid of being a good mother, or how I could shield her away from the harshness of the world but, with attitude that we were going to okay. I met with all the specialists, and fortunately all the ailments that were told to me did not effect her. True they give you all of the possibilites about what to expect but, I told them that the only thing I should expect is pure joy and love from Kameron. I thought that being a single mother would play a negative role but only the opposite. I have so much support not from the doctors but, the teachers, therapists, friends and family. Only after four months of being together, Kameron thrives on the love and support she gets from everyone and not because she has a "condition." I thank God daily that she is here to make me laugh, cry, love and smile with her. She is the best thing in my life from now until eternity. My mom asked me a few weeks ago if I was going to have another child. I told her that just because I was blessed once not to knock those blessings. I will have more children as many as possible and pray that they are as wonderful as Kameron. God Bless all of you for the inspiration and information. I would not have found better. Andrea and Kameron
Andrea Neal <KRN4198@aol.com>
New Carrollton, MD USA - Friday, August 07, 1998 at 11:25:41 (PDT)
We have two daughters, Danielle, 21 mo. and Heather 3 yr. . My youngest Danielle was born with down syndrome and congenital heart disease. Her pediatrician told us 45 minutes after she was born that she showed signs of "Down Syndrome". She had surgery at 7 mo. old and was successful for complete av canal and tetrology of fallot. She's now climbing stairs bottom to top, stands at everything she can and climbs onto the sofas by herself. We think she'll be walking within the next two months. She has come a long way since her surgery and is very strong. She's had a few other medical problems including reflux starting at 10 mo.of age and is treated with medication. She also was born with esotropia/ambliopia in both eyes and will need surgery eventually. We now patch her eyes to keep the muscles strong. If anyone has a child with this condition I would like to hear your experience. We have heard different things on what age would be appropriate to have surgery. I enjoy reading this page, it's very encouraging.
mariellen <mariellenr@juno.com>
derryn, nh USA - Thursday, August 06, 1998 at 18:52:12 (PDT)
We teach yoga to infants and children with Down Syndrome. Our book Yoga for the Special Child is available to assist parents, educators, and therapists looking for alternative therapies. Please see our web site for more information.
David Debs <info@specialyoga.com>
Buckingham, VA USA - Thursday, August 06, 1998 at 06:34:49 (PDT)
I highly recommend the book "DIFFERENCES IN COMMON" by Marilyn Trainer. It's a mother's journal about her son with Down Syndrome, from birth to adulthood. Very heartwarming....enjoy! It brought many different feelings. I have a son that is 11yrs. old, with Down Syndrome. He has always been a blessing.
KATHY
USA - Wednesday, August 05, 1998 at 14:02:56 (PDT)
We are the proud parents of Jason, who turned 2 in June 1998. He is trisomy 21, and is the apple of our eye. And, we are pregnant again, and due in December 1998.
Paul & Jackie van Wulven <Ppvwgolfer@aol.com>
Hermitage, TN USA - Tuesday, August 04, 1998 at 13:35:38 (PDT)
Hello all ! I just wanna say, that after my niece was born (who has DS) i just started gathering info. Your (and other's) info helped me and my family out a lot ! Thanx 4 everything and LATERZ !
Guus Pot <Silver_Scorpion@Hotmail.com>
Rotterdam, Netherlands - Tuesday, August 04, 1998 at 07:53:55 (PDT)
This is for those who have never read this letter entitled: WELCOME TO HOLLAND "I am often asked to describe the experience of raising a child with a disability-to try to help people understand it, to imagine how it would feel. It's like this... "When you're going to have a baby, it's like planning a fabulous vacation trip-to Italy. You buy a bunch of guidebooks and make wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting. "After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland." "HOLLAND?!?" You say. "What do you mean, Holland? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy. "But there's been a change in the flight plan. They've landed in Holland and there you must stay. "The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place. "So you must go out and buy new guidebooks. And you must learn a whole new language. And you will meet a whole new goup of people you would have never met. "It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around, and you begin to notice that Holland has windmills, Holland has tulips. Holland even has Rembrandts. "But everyone you know is buy coming and going from Italy, and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say , "Yes, that's where I was supposed to go. That's what I had planned." "And the pain of that will never, ever, ever go away, because the loss of that dream is a very significant loss. "But if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things about Holland." by Emily Perl Kingsley
Sandra <migrman@riolink.com>
T. or C., NM USA - Tuesday, August 04, 1998 at 05:58:10 (PDT)
hi im new to this sight and was very happy to find it as i have 3 children 2 girls and a little boy named luke who is 4 months old and has down syndrome. he is our precious little boy and we love him to bits we couldnt imagine life without him as he has brought so much joy to all our family. he has no medical problems and has been rolling on his side by himself for about 3 weeks and has been on his tummy lifting his head up since he was 2 months old and we are very proud of him. he is our little prince and this christmas he is going to have a ball with all the toys hell be getting because weve only ever bought girls toys and now we have a chance to go and buy all those trucks and toys that make a lot of noise. we love him and couldnt imagine our lives without him.so to everyone out there with a down syndrome child god bless because i think we are very lucky to have our children.
sue <farrugia@cia.com.au>
sydney, nnsw australia - Monday, August 03, 1998 at 23:21:24 (PDT)
Hello: My sister who has a 6 year old with DS is feeling very isolated in this small town in Washington State and needs to communicate with other parents who know her predicament. She is a single mother with two other children ages 7 and 11. I'm home visiting from my home in NY City and thought I would help her find a group like yours and what do you know......I did! She really has no computer experience but her parents have a computer and don't live very far away so she could use this one until she gets her own. If anyone out there would like to welcome her into the fold it would be greatly appreciated. I really feel that she is getting overwelmed by her responsibilities and needs to hear from others who share her experiences. Her name is Nancy Lewis and she can be reached at fraser@ellensburg.com Thank You....her brother Rob
Rob Fraser <fraser@ellensburg.com>
Ellensburg, WA USA - Monday, August 03, 1998 at 21:58:10 (PDT)
It seems that my first try to put a message on didn't go through so I'll try again. I just wanted to post a 800 number for information on NuTriVene-D formula. There's a company out of Baltimore,MD called International Nutrition, Inc. that sells the formula and if you inquire about it, they will send you information as to what supplements are in their formula. They also have a web address - pugacze@ibm.net. They also include a newletter put out by F.R.I.E.N.D.S. If you have questions, call them. Sandra
Sandra <migrman@riolink.com>
T. or C. , NM USA - Sunday, August 02, 1998 at 15:01:08 (PDT)
This is Sandra and I left out the 800 number for NuTriVene-D. It's 1-800-899-3413.
Sandra C. <migrman@riolink.com>
T. or C., NM USA - Sunday, August 02, 1998 at 13:01:54 (PDT)
Hi again. I've been reading that there are questions regarding the NuTriVene-D vitamin therapy. I have a 800 number to a company in Baltimore, MD called International Nutrition, Inc. I obtained this address from a friend in S.C. Their address on the website is : pugacze@ibm.net. They will send you a list of the vitamins in their formula and the prices. There are other resources listed on the paper that they send you published by a group called F.R.I.E.N.D.S. of Trisomy 21. I've met several new parents thanks to Upside and I'd like to say thank you. Write anytime. Sandra
Sandra C. <migrman@riolink.com>
T. or C., NM USA - Sunday, August 02, 1998 at 12:57:08 (PDT)
I HAVE A FOUR YEAR OLD SON WITH DS. WE HAVE HAD A POSITIVE EXPERIENCE WITH HAP CAPS. I AM NOT COMFORTABLE WITH PIRACETAM. WHAT IS NUTRIVENE AND HOW DOES IT FIT INTO ALL OF THIS.? HELEN
HELEN GOTTESMAN <RHARHA@GATEWAY.NET>
BOYNTON BEACH, FL USA - Sunday, August 02, 1998 at 09:34:58 (PDT)
We are the parents of Brandon(28 months) and are interested in learning more about Nutravene. We have had Brandon on natural vitamins we heard about in L.A since he was 4 months. He's been very alert and has had good muscle tone since birth, but wanted to give him every opportunity we can to enhance his life. We would appreciate any feedback before we purchase Nutravene. What we want to know is if it has any side effects, and any other bits of information you can give us to make a sound decision. Thanks for your inpout! Tim & Teresa Gruber us.
Teresa Gruber <trgruber@ix.netcom.com>
San Jose, CA USA - Saturday, August 01, 1998 at 22:23:55 (PDT)
Hello. My name is Colette and I have 2 children Christopher (3) and Katie (9months). Katie has Down Syndrome and was born here in Bahrain. We have been very forntunate with our paediatrician, in that her attitude to DS is very positive. Unfortunately that does not reflect the rest of the attitude in this country, the locals tend to hide their children away as if ashamed. This also means that there are next to no support services here. I have met one Bahraini lady with a 3 year old with Down Syndrome who can't walk yet, and as my son put it "only makes funny noises", and have another friend who is also (like me)British and she has a 7 year old with Down Syndrome. It would be great to hear from anyone who has a child about the same age as Katie and would like to tell me about him/her and also hear about Katie. Be warned, I will probably be plugging you for info. re. what I can be doing to help her ie. what your health professionals recommend wherever you come from. Oh and for anyone wanting more info on piracetam/TNI I have found the DownsEd website helpful. bye for now Colette PS Katie had open heart surgery on May 6th back in the UK, she has recovered wonderfully despite only having a 80% chance. She had 2 holes and only one valve, the valve is now leaking a little but is nothing to worry about for now. Anyway I've had enough to worry about for a few years these past few months!!!
Colette Lloyd <dclloyd@batelco.com.bh>
Bahrain - Thursday, July 30, 1998 at 12:04:01 (PDT)
I have noticed that nobody has mentioned Special Olympics! Here in Ireland, we are said to be the second Most developed Special Olympics in the world. The thing is the country we are second to is the USA. Quickly scanning through the guestbook, I see you all are from the US. Special Olympics is a great outlet for kids AND adults with DS. There is such a social side to things also. Not just sport. My 16-year old sister competes in gymnastics for our province and will hopefully compete for Ireland in the 1999 games in the US. She has countless medals for her categories over the years. If you look at http://www.specialolympics.org you might find your state's local branch. Special Olympics are different from Para-lympics as mental handicap is involved. "Special Athletes" are truely special and one visit to a sporting event will have you convinced of the benefits of fun, family, social interaction and sport. Check it out. It's well worth it.
Dave Leech <David_Leech@Notes.Teradyne.com>
Dublin, Ireland - Wednesday, July 29, 1998 at 07:33:49 (PDT)
Firstly, I'd like to comment Upside for a wonderful idea of a chat forum. We have found it very difficult to find a channel to network with other families of DS within Ireland. For those with new-born and young DS kids I feel I'd like to add a bit of encouragement. When my 16-year old sister, Tara, was born with DS, the doctors were negative and pesimistic. No need for that. Tara is attending main-stream school, (after lots of fighting by my parents with schools and board of education). She reads, writes, has many many medals for basketball - she beats me nearly every time and I'm 22. She loves reading and dancing and mirrors the Spice Girls' moves at every opportunity. Sure, her math isn't great and she's not too good at languages but she loves learning and is the life of any gathering. Tara is currently doing a summer assignment on physio therapy for young people with Down Syndrome. Can anyone tell us where to get info on this subject? It is proving difficult to find info.
Dave Leech <David_Leech@notes.teradyne.com>
Dublin, Ireland - Wednesday, July 29, 1998 at 03:47:04 (PDT)
Gary Jr came into our lives on Jul 11th. We are blessed by his good health so far. Just ordered Nutrivene-d from TNI and am anxious to give the little guy any help I can. Feel free to E-mail me with pointers. Great website.
gary gerhart <gerhartg@aol.com>
haughton, la USA - Wednesday, July 29, 1998 at 02:46:11 (PDT)
Hello I am a highschool student and I would like to have a career working with down syndrome children and people someday and I was just kinda wondering if anyone would have any suggestions in to what to go into to please email me if you have anything to say or just a story to tell me. The children in here are all so cute thank you very much! Nicole Howard
Nicole Howard <Nicole23Howard@yahoo.com>
Maynard, Minnesota USA - Tuesday, July 28, 1998 at 11:04:12 (PDT)
Hi, my name is Maria Hey. My husband and I have a beautiful son with Down Syndrome, Gabriel, who just turned four. We are also very busy with Malachi, 2.5 yrs. and Hannah, 16 mos. I am a member of a great support group in San Antonio, TX with great hopes of establishing a web site soon. How exciting to talk to parents with a similar blessing. I'm not on line yet, I'm borrowing my brother's computer right now. I'm looking forward to chatting with you in the near future.
Maria Hey
San Antonio, TX USA - Monday, July 27, 1998 at 14:48:15 (PDT)
This is Sandra again. I was fortunate enough to connect with this web site yesterday for the first time. We recently moved to NM after living in Charleston, S.C. I am hoping to connect with families living in Charleston. I belonged to a DS Association there and was participating with a program called The Caring Connection. Please e-mail me if you live in the area. S.C. offers so many resources for children with Down syndrome. My daughter qualified for the TEFRA program through the State based on her disability and not on our income. So many doors opened for us there. She received ST, OT, and PT along with EI shortly after arriving there. I only wished the other states in the US would offer such a fantastic program. The doctors there were very knowledgeable in Down Syndrome. Here in NM there is a 10 year waiting list for Medicaid referred to as the DD Waiver. Again, if anyone in Charleston connects with this website, please e-mail me. I thank all of you for sharing life stories I've read. Sandra
Sandra Carrera <migrman@riolink.com>
T. or C., NM USA - Sunday, July 26, 1998 at 14:45:33 (PDT)
For information on Piracetam and the rest of the Targeted Nutritional Intervention (TNI), please visit http://www.tri21.org/DrDave/
Ann
PA USA - Sunday, July 26, 1998 at 09:39:04 (PDT)
I just wanted to say that I love this web site. My husband and I have four children. Our little daughter is two and was born with Down syndrome. We feel she is a blessing from God. I would love to hear from other parents that feel the same way. We live in a small community and our daughter is the only young child with Down syndome here. I would love to share information with other parents. We are getting ready for school this year and I would love information on the IEP.
Sandra C. <migrman@riolink.com>
T. or C., NM USA - Saturday, July 25, 1998 at 19:16:17 (PDT)
Hi all, just want to apologize to those who may have tried to answer my question regarding OSA(obstructive sleep apnea) from July 2. I had typed in my email address wrong. I would still be interested in your personal experiences and comments. Thanks.. Kathy.
Kathy Paupore <Pinemarten@bresnanlink.net>
Kingsford, Mi USA - Saturday, July 25, 1998 at 18:17:23 (PDT)
To Allison from GA.... We have 3 girls on Nutrivene D and two of them on Piracetam. They would all be on it except the youngest one still lives in Taiwan, we can send vitamins but not medication. I would love to tell you about my kids and give you more info. re: Targeted Nutritional Intervention. Please e-mail me. Cindy B
Cindy B <jcburg@a-znet.com>
Phoenix, NY USA - Friday, July 24, 1998 at 18:31:45 (PDT)
To Allison from GA... I haven't tried the drug myself, but I just went to a medical conference in Jacksonville Flordia. I went to the class covering the drug and with all the questions asked about it, the doctors there doing the studies (which they addmitted themselves that they were somewhat limited) could not say for sure if it works or not. The studies they do have just don't give a definate enough outcome to really say. It's a personal decision. Some say it has made a difference, some can't really say for sure. Good luck in your efforts
Holly <scully@eagnet.com>
USA - Friday, July 24, 1998 at 14:57:23 (PDT)
Hi My name is Lilliana and my son's name is Martin. He is 2 yrs old & my only child. When he was born, I was informed he might have Down Syndrome. When I told his father, He told me to give him up for adoption. We were not together at the time. I told him if he didn't want Martin, I did, D.S. or not. Now 2 yrs later, Martin is a happy, intelligent, healty and very active Down Syndrome boy. His father, Raul, is his biggest fan and he loves his little boy, D.S. or not. :) We have been back together since Martin was 4 mos old and are getting married on Sept. 9th. We have a pet Amazon parrot and we bought him a C.D. to teach him to talk. Martin now knows how to say "Bad Bird" but the bird has yet to learn. Martin is a very handsome boy with (or without) his glasses (he has Strabismus or "cross eyes") but he hates to wear them. If anyone knows of ways to have him keep them on, please let us know. Final note: there is a slang term that means "hip and really cool", that term is "That's Down". Martin is Down & that's really cool. :) :)
Lilliana Medina <lillimoon@yahoo.com>
Long Beach, CA USA - Friday, July 24, 1998 at 14:54:54 (PDT)
HELLO. I'M ALLISON AND I AM 21 YRS. OLD. I'M ALSO NEW TO THE WORLD OF DOWN SYNDROME. ABOUT 3 MONTHS AGO, I GAVE BIRTH TO MY SECOND CHILD. WE KNEW SHE WAS GOING TO BE A GIRL. MY HUSBAND AND I WERE SO EXCITED, BECAUSE WE ALREADY HAVE A 2 YR.OLD SON. A BOY AND GIRL; THE "PERFECT" FAMILY. WELL, 3 HOURS AFTER I GAVE BIRTH, OUR PEDIATRICIAN CAME IN TO TELL ME THE MOST DEVASTING NEWS. HE SAID OUR "PERFECT" DAUGHTER POSSIBLY HAS D.S. IN THAT KIND OF PROFESSION, A DOCTOR DON'T SAY MAYBE WITHOUT BEING SURE FIRST BEFORE TELLING PARENTS. THEY KNOW THE SIGNS. I WAS NUMB ALL OVER AND COULD NOT THINK. MY HUSBAND WAS IN COMPLETE SHOCK. 45 MINUTES LATER, A NURSE PRACTIONER CAME IN AND ASKED ME (WITHOUT MY HUSBAND BEING PRESENT) IF I WANTED TO GIVE MY ASHLEY UP FOR ADOPTION. I WAS STUNNED!!!!!! THAT IS NOT SOMETHING YOU GET ASKED, THAT'S SOMETHING YOU ASK! AT THAT MOMENT IT DID NOT SINK IN WHAT SHE HAD ASKED ME. THE NEXT DAY I TOLD MY HUSBAND. HE WENT MAD. HE FINALLY CONFRONTED HER, AND TOLD HER THAT HE DID NOT APPRECIATE THAT ONE BIT. TO ALL OF YOU PARENTS, THESE KIDS DON'T ASK WHO GETS TO BE THERE PARENTS, THEY WERE GIVEN TO US AS A "GIFT" TO SHOW ME AND YOU HOW PRECIOUS LIFE IS. I NEVER KNEW A SINGLE THING ABOUT DOWN SYNDROME UNTIL ASHLEY CAME ALONG. THOUGH, SHE IS ONLY 3 MONTHS OLD, SHE DOES NOT APPEAR TO HAVE ANY MEDICAL PROBLEMS. SHE IS ALREADY HOLDING HER HEAD UP WONDERFULLY , AND SHE'S BEEN SMILING & COOING FOR ABOUT A MONTH NOW. SHE IS A LITTLE SCOOTER. SHE LOVES TO SCOOT ALL OVER HER BED. HER PROGRESS SO FAR SEEMS ABOUT NORMAL, LIKE A "NORMAL" CHILD. I HEARD OF A DRUG TO HELP TREAT KIDS WITH D.S. IT'S CALLED PIRACETAM. IF YOU KNOW OF ANYTHING ABOUT THIS MEDICINE AND HOW IT IS HELPING, OR NOT, PLEASE LET ME KNOW. I'VE BEEN CONSIDERING ON USING IT FOR MY DAUGHTER. THIS IS A WONDERFUL SITE. THANKS EVERYBODY!!!!!
ALLISON
KATHLEEN, GA USA - Friday, July 24, 1998 at 12:41:55 (PDT)
Hello to all.. I've been watching these boards sense i found this site a few weeks ago and i'm noticing that more and more parents mention sleep apnea. I didn't realize that so many would get it after they become adults. Is this common or is it another one of those "10 persent of all people with d.s. will have......."? I've seen no symtoms with my son but it's something i've been asked questions about (peds)
Holly <scully@eagnet.com>
USA - Friday, July 24, 1998 at 09:43:36 (PDT)
Hi. There's 5 of us. 2 overworked parents Marian and Ed. Three children: Kevin age 9, Katie age 7, Michael age 2. Kevin has Down Syndrome. Katie and Michael have convinced me that there's no such thing as normal!! It's funny that "surfing" is almost passe in some circles, yet so many of we "special" parents say that we are new to it. Priorities? Real life? I guess. No offense to the surfers. Anyway, Kevin is a great kid. He's been fully included for K, 1st and 2nd grade, Now he's going into a spec ed class real REAL tight profile in Sept. The teacher is a behavior specialist. I do believe that is going to be great for Kevin. He can write his name, working on personal info (address, etc) and can copy words/letters. He reads, and can sound out words. Math is a disaster (I was a statistics major in college. tee hee). Loves the computer and is very adept. I,, we , have utmost respect for Kevin. He has a very important job here on earth. I watch him work; I see him leave people in his wake. He makes a difference. That is my hopes for all of our children. And he is the only one of our children who thinks to kiss our puppy Clancy goodnight, everynight. Cheers to all.
The Heinzinger Family <eheineez@bestweb.net>
Mahopac, NY USA - Thursday, July 23, 1998 at 19:36:27 (PDT)
Just discovered your web site. Eric, our firstborn, is 21 and works as a full-time volunteer at an area hospital medical clinic where he is thought of highly. Wherever Eric has been, he has left a lasting mark on the hearts and minds of others. One fine human being. We're evaluating interventions for his recently diagnosed sleep apnea. Two trials with CPAP (continuous, partial, air presessure) technology ended without success, which is not unusual. We're presently weighing a surgical intervention, but are hesitant to proceed. Anyone out there have knowledge and/or experience with treatment of sleep apnea and DSadults.
Keith & Karen Martin <kman@exis.net>
Norfolk, VA USA - Thursday, July 23, 1998 at 10:49:54 (PDT)
Hi forgot to put my e-mail address on my commment. If would like to talk about Down syndrome e-mail me. I have ICQ so if you do send me your # and we can chat. I just love my little bundle of joy Darell Ray. he is such a good baby.
Jane <JBrooks@Wyoming.com>
- Tuesday, July 21, 1998 at 21:17:36 (PDT)
Darell Ray is 20 months now. He has been verry healthy. He takes Nutravene-D vitimans . He is a wonderful little Christian he just loves to throw up his hands when you say praise Jesus. We were really scared when we found out he has Down Syndrome. But now we are so grateful he is healthy. Darell is a verry happy baby.
Jane
Cody , Wy USA - Tuesday, July 21, 1998 at 20:29:51 (PDT)
I stumbled upon this site recently and I am very new to the Internet, however my hushband and oldest son are not. We have 4 children, Wesley 16, Evan 7, Jordan 4, and Katie 17 months. Evan has Down Syndrome and is adopted. All the others are our birth children. God just seemed to have a little different plan for us than we thought. Wes was 9 when through some divine circumstances we were presented with the opportunity to adopt Evan. We wanted more children but couldn't understand why we weren't having them. Of course now we realize God's plan was for us to have Evan. We brought him home from the hospital and loved him ever since. We have walked roads we never imagined, and are grateful to God for His grace when we need it. Evan has been through AML Leukemia and is 6 years in renission, he has no heart problems, but recently did test positive for obtructive airway sleep apnea(sp). So far we haven't treated him other than medically for the apnea, although we are not opposed to it. I would gladly correspond with others. Susan Thomas kwt@flash.net
Susan and Kent Thomas <kwt@flash.net>
Crosby, TX USA - Tuesday, July 21, 1998 at 19:15:09 (PDT)
Maria and I just had a baby son (the fourth in the family) with DS. His name is Jose and was born on April 19th, 1998. We are a catholic family and believe that God sent us this beautiful boy for a special reason. Jose is doing fine so far however we have no idea when and how is the correct time to start with the therapies the DS children need. We hope all of you special families around the world can help us sharing your experiences and needs. Thank you for spending your time reading our note. God bless you all.
Javier Valero, MD <javo@intercable.net>
Garza Garcia, NL Mexico - Sunday, July 19, 1998 at 19:16:39 (PDT)
Hello! We are adopting a little girl, three with DS. I am looking for a support group and a List. If anyone has this information if they could please e-mail me I thank you! !
Dorothy Forrest <soto@volcano.net>
Jackson, Ca USA - Saturday, July 18, 1998 at 06:49:57 (PDT)
I wrote last week ( printed 10 pages ...etc. ) It didn't really take me that long to read them, but our 6 year old was hospitalized for 4 days. We are the parents of 4 children through birth and adoption. In 1990 Heidi ( DS 8 ) arrived @ the age of 10 wks., seven months later Cal ( 7 ) was born, 9 1/2 mos. later Corrie ( DS 6 )arrived @ the age of 5 days. Feb. '98 we adopted Laura Mae ( DS 2 ). She lives in Taiwan until we can solve our Immigration problems. On paper & in our hearts she is ours, but the U.S. gov't. says " Not so fast .... ". We also have Cindy, a foster child, ( 3 w/ spina bifida ). All of our girls w/ DS are on TNI and we love it. Heidi & Corrie are also on piracetam. We have heard from some folks, and I will write back soon. Thank You for a great website! Cindy B
Cindy B. <jcburg@a-znet.com>
Phoenix, NY USA - Friday, July 17, 1998 at 17:09:08 (PDT)
For Charlotte in Milwaukee, WI ... I'll be happy to answer your child of the month question, but you need to use your correct e-mail address (IIIOIOIIIOI@aol.com doesn't work).
Varon Mullis <oldmill@telebyte.com>
Bainbridge Island, WA USA - Friday, July 17, 1998 at 05:41:22 (PDT)
My son Joseph K Cross II was born 11 Jul 1998, he is very handsome and he has down syndrome with transient leukemia. He will not attend West Point like we hoped but he will always be perfect to me and his mother. Everything happens for a reason and we will love this child more everyday the good Lord lets us keep him. Joseph K Cross SFC Army
Joseph Cross <crosswhite@compuserve.com>
Staunton, va USA - Thursday, July 16, 1998 at 20:27:08 (PDT)
I am the director of The Happinest CHILD Care PROGRAM in Flushing Queens. I am a former special educator with the NYC Board of Ed. Presently, I am writing information sheets for other childcare providers who are interested in inclusion. At the Happinest we have two spots for children with special needs. these spots are for September. (We only take 12 a day) If anyone is interested please call us at 718-460-4290 or e-mail us at Americanbull@msn.com classic. Thanks!
Lori Vallejo <Americanbull@msn.com>
Great Neck, n.Y. USA - Thursday, July 16, 1998 at 11:55:28 (PDT)
My baby sister (she's not really a baby, she's 18) has DS. My family and I consider her a very special gift from God. I cannot imagine my life without her and hope I never have to. It's great to see sites like this where all of us who have these "gifts" in our lives can share stories. Thanks, Charlotte and Baby sister, Michelle :)
Charlotte <IIOIOIIIOI@aol.com>
Milwaukee, WI USA - Wednesday, July 15, 1998 at 21:38:23 (PDT)
I notice many questions concerning potty training. Just thought I would reference, if you haven't already read it, an article on "Toilet Training" which can be found at the site of "Down Syndrome Health Issues". Maybe it will prove of some help. Would love to read of solutions or help tips from others.
Just Me
USA - Tuesday, July 14, 1998 at 20:46:43 (PDT)
My Godson, Nelson is 3yrs old and is very bright. He's been attending ACDS (school for kids w/DS)since he was 6mos old and he can sign faster then lightning, but his mom & I are concern because his is having a hard time w/prouncing even very simple words such as dog, cat, milk, etc. We know Nelson understands most of what we say (even when we are not talking to him),because he starts signing and showing us that he knows what we are talking about. And when he is faced w/someone that does not know signing he will make the motions and somehow make that person understand him. He is amazing. As you can probably tell by my bragging, Nelon is my is the jewel of my heart. Nelson is also my buddy and I would love to help him learn to talk. I know he has so much to say. He is so full of life,I can't wait until he can share his point of veiw and his wisdom with the world. If you or someone you know can share some suggestions that might be of help, place e-mail me. Thank you for taking the time to listen.
Dorothy Gines <GinesD@aol.com>
Flushing, NY USA - Saturday, July 11, 1998 at 19:14:12 (PDT)
I have a 4 year old daughter named Michaella. I am very interested in finding our information on how I can teach her how to spell her name, potty training(especially potty training) and anything else that will be helpful during the summer months. She attends special-ed preschool and loves it. She does very well but I'm afraid that she might not retain the information she has already learned. She is very smart and knows most of her alphabet and can count to 10 with very little assistance
Janet Donofrio <jetjet1@juno.com>
Anchorage, Ak USA - Friday, July 10, 1998 at 14:16:42 (PDT)
Boy can I relate to Rissee's comment about wondering if she would be a good enough mom to her child with DS! I remember wondering the same thing in the early days. My son is now 4 1/2 and doing great and of course you learn that they just need love from their moms like any other child! Everything else will work out. I really enjoy the Upside! Guestbook. Ree
Ree <fwillms@prodigy.net>
Caldwell, ID USA - Friday, July 10, 1998 at 06:42:52 (PDT)
LOVE THE SITE... OUR DAUGHTER HAS DS.. SHE IS ALMOST ONE. SHE HAS NO HEALTH PROBLEMS AND IS CRAWLING, STANDING, BABBLING AND INTO EVERYTHING. SHE SEEMS THE SAME AS HER BIG BROTHER (5 1/2) AND HER BIG SISTER (11). OUR BABY GIRL LAUGHS ALLTHE TIME AND IS JUST THE BEST BABY!!! ( I MIGHT BE A LITTLE BIT BIAS) ANYWAY I KEEP WAITING FOR HER TO BE "slow" AND SO FAR SHE HAS BEEN KEEPING PACE WITH OUR OTHER TWO. WE ARE TRULEY GRATEFUL FOR HER SWEET SPIRIT. AT FIRST I WAS VERY SCARED AND WORRIED ABOUT IF I WOULD BE A GOOD ENOUGH MOM FOR A CHILD WITH A SPECIEL NEED. BUT AFTER I SAW HER I FELL IN LOVE AND WE HAVE BEEN THRILLED EVER SINCE.MY ADVICE FOR ANY NEW PARENT IS REMEMBER THEY ARE YOUR CHILD FIRST... DON'T WORRY SO MUCH ABOUT THE DS. THANKS FOR YOUR SITE!!
RISSE <RISSEE>
CA USA - Thursday, July 09, 1998 at 18:09:24 (PDT)
Looking for parents of ADHD-Downs kids. Have A 12 year old. want toget some information and good ideas. Please E-Mail Thanks Ann.
Ann <RcaxiumChgo>
Chgo, IL USA - Thursday, July 09, 1998 at 16:58:50 (PDT)
I'd like to get some information on how to set up a Down's group both for the children and the parents. My son is Down's son is 22 months old and I'd like to be in closer contact with other parents. If you have any information please contact me.
Connie Wolf <CONNIE_WOLF/UT/ASP@AUTOLIVASP.COM>
Perry, UT USA - Thursday, July 09, 1998 at 06:01:00 (PDT)
Hi! I am brand new to the internet and just found your WebSite. I printed 10 pages from the guest book and can't wait to read through them. We have three daughters with DS and I would love to tell you all about them, which I will after I've read my 10 pages. I'm very excited to have found this and can't wait to come back! Cindy B.
Cindy Burghardt <jcburg@a-znet.com>
Phoenix, NY USA - Wednesday, July 08, 1998 at 17:24:37 (PDT)
Hello all! My name is Kathy. I pop into Upside from time to time and enjoy this website guest page for all the info. I am a full time mother of two VERY active boys, one almost four and one almost 2 1/2 years old. My youngest happens to have down syndrome, though to me this is low on my descriptive list of adjectives to discribe this remarkable person. His name is Chase Robert. He is as healthy as a horse, no medical problems to speak of, not a single ear ache, though did get tubes due to fluid retention, is very active, loves music/singing in conjunction with finger play, wrestling, climbing, school, looking at books, tele-tubbies (squeal) sesame street, and swimming. I am looking to find a pen pal. Some one to just share stories, therapies, difficulties, laughs. I am not able to get on the computer every day, more like every three days or so, but would enjoy writing back and forth over time. Reguardless of age or circumstance, if this sounds good to you, please write. Best to all.
Kathy <dgetman@azstarnet.com>
USA - Tuesday, July 07, 1998 at 22:05:07 (PDT)
I AM NEW TO THE INTERNET AND JUST FOUND THIS. I AM THE MOTHER OF A 7 YR OLD LITTLE GIRL, NAMED KAYLEE THAT HAS DS. I WAS ONLY 27 YRS OLD WHEN I HAD HER AND THE DR HAD NO IDEA THAT THERE WAS A PROBLEM. WHEN I WAS TOLD THAT SHE WAS BORN WITH DS I JUST WENT NUMB THEN I CRIED FOR WEEKS. SHE IS MY THIRD BORN AND NEVER IN A MILLION YEARS WOULD I HAVE EVER GUESSED THAT THIS WOULD HAPPEN. HER BIOLOGICAL FATHER HAS REJECTED HER AND HAS ONLY SEEN HER ONCE AND THAT WAS WHEN SHE WAS BORN. HE IS IN THE US NAVY AND I HAVE NOT HEARD FROM HIM SINCE 1990. I HAVE SINCE MET AND MARRIED A WONDERFUL MAN WHO ACCEPTS KAYLEE AND SHE HAS TAKEN HIS LAST NAME AND CALLS HIM DADDY. I AM HAVING A REAL PROBLEM GETTING KAYLEE POTTY TRAINED, SHE WILL NOT DO HER BM'S IN THE TOILET. IF ANYONE HAS ANY SUGGESTIONS I WOULD REALLY APPRECIATE SOME HELP. SHE ACTS LIKE SHE IS AFRAID. KAYLEE HAS NO HEART PROBLEMS, IS REALLY HEALTHY. SHE DOES HAVE WEBBED TOES, THE DR SAID IT WILL NOT AFFECT HER BALANCE OR HOW SHE WALKS, SO THERE IS NO NEED FOR SURGERY. MAY GOD BLESS ALL OF THE PARENTS WITH CHILDREN WITH DS.
RANDIE PONOZZO <PONOZZO@TELEVAR.COM>
EPHRATA, WASHINGTON USA - Thursday, July 02, 1998 at 22:55:49 (PDT)
Any parents out there who have children diagnosed with obstructve sleep apnea, I would very much like to hear from you. I have just started looking into this and I feel my 3 1/2 year old daughter Meghan may have it. She has many of the symptoms. Please contact me at my e mail address. Thank you.
Kathy <pinemartin@bresnanlink.net>
Kingsford, Mi USA - Thursday, July 02, 1998 at 20:33:26 (PDT)
great site keep up the great work, see u soon. smiles.
natasha <lkvn0000@humberc.on.ca>
mississauga, on canada - Thursday, July 02, 1998 at 12:56:15 (PDT)
I have a nearly 5 yr old son with down syndrome. We will be starting kindergarden here in the fall. So far Zachary has done very well and we plan to mainstream him again this year. We have been very lucky, Zach has never had any medical problems with the exception of lousey ears (otis media) .... so what's new, I know. We are now potty training. He has absolutely no interest in using the potty for bm's. If anyone has any ideas on stimulating him to do that I would welcome any suggestions..( he says he's scared) ?? I don't know. I'm hoping when his little sister, 19 mo, starts he will choose to keep up with her. We'll see, he has a mind of his own. The only other problem we have and it's a big one is that he is a runner. He has no concept of the danger he puts himself in. I've tried everything i can think of. We just keep plugging away at it. Otherwise, Zachary is a very well adjusted happy little boy. We expect everything from him. It's been a very positive experience for us. He's a great little guy. If anyone has any suggestions they would like to share feel free to email me or i'll be watching the board..GOOD LUCK TO YOU ALL!!
Holly <scully@eagnet.com>
USA - Thursday, July 02, 1998 at 09:03:56 (PDT)

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